James Fuller

Heidi Bright

James Fuller       

James Fuller was young and vibrant when diagnosed with Synovial Sarcoma.  He is a devoted father, music lover and sarcoma fighter. He has undergone countless treatments, obstacles and never lost faith for a cure.  His loved ones are rallying, raising awareness and are fundraising for James during his current battle with sarcoma.  His sister Melanie stated 

My brother has faced so many obstacles from the day he was diagnosed with a high grade polymorphic synovial sarcoma that was already 11cm and growing. The same day of diagnosis he found out he was going to be a father again. He was in complete shock. The news of cancer and a baby it was like out of a movie. I am in the medical field and I am what some call a cheer leader or team captain I made a decision that day I would not ever let my brother give up no matter what the doctors told him and I do believe in miracles and that you can create better results health wise by having a positive attitude.”

James and his family have focused on raising awareness and funding for Synovial Sarcoma research. 

“LUMPS CAN BE DANGEROUS HAVE THEM CHECKED! If we can spread this campaign and get national recognition more may be done to help fund research, treatment, and finding a cure.  Now there is almost no funding for treatment and awareness.  I want to change that.”

Click on James's gofundme page to learn more about this inspiring sarcoma fighter and how to help.  His sister Melanie said, “He is a 39 year old wonderful father who deserves more time with his family.   I believe in miracles and I have faith that he can make it through this.  He is my hero”   We are thinking of James  and his family during his battle with sarcoma. 

https://www.gofundme.com/helpjamesbattle

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In Memory of Doug Hoder

Doug & Donna HoderDoug Hoder passed away on February 3rd, 2017 after a 10 month battle with the osteosarcoma.  Prior to that, he had been a healthy, active, 62 year old man until the disease revealed itself.  

Doug was a person of extreme, passionate curiosity.  His interests included electrical engineering; math; cooking; woodworking; gardening; music; drumming; and photography.   He had a BS and an MA in Electrical Engineering, and an MA in Math.  He had been the Union Steward for the International Federation of Professional & Technical Engineers at NASA where he worked.  He loved to attend the local ethnic festivals to experience different cultures.  He also loved to travel to foreign countries and immerse himself in the cultures fully.  He even went as far as studying the language of whatever country he visited. Doug had a love for the Joshua Tree dessert and anyplace with mountains and lakes.

This is his story, as written by his wife, Donna, so that others may remember Doug, and learn from his experience:

My husband began having pains in his right leg around Sept. 2016 at age 62. The pains became progressively worse by Dec. 2016 to the point he had to use a cane to walk. He was prescribed PT, which he began doing regularly.

Then on April 3, 2016 he felt something snap in his left leg in the evening. April 4th woke up in excruciating pain and was taken by EMS to the hospital. Was then diagnosed with a broken femur bone on his left leg. It was broken by a tumor that had busted through the bone. The broken bone scattered pieces of the tumor throughout his tissue. Ironically, once the left bone broke, the pain in his right leg subsided permanently. Scans also revealed that there were lesions in one of the lungs.

His first operation was on April 11th, the tumor debris cleared, the bone set with metal plates. The plan was to operate again after an intensive, in-house chemo treatment. After healing from the initial surgery, he was given a 3 day, 24 hour round of doxirubicin and cisplaton in the hospital - (May 10-12). Still in the hospital on May 13th, he leg had tremor in his left leg so violent that it shattered the metal plates.

Too soon after chemo to operate, his leg was put into a toe-to-groin cast for 3 weeks. Another surgery followed on his leg, at which time the damaged bone was replaced by a prosthetic titanium rod.

Doug HoderThe surgery was successful. He had lesions successfully removed from his left lung in July. By the end of August he was having leg difficulties again. The tumor had grown aggressively. The surgeon successfully removed as much tumor as possible, which was about 99% of the mass. After surgery, the goal was to allow the tissue to heal, and then proceed with radiation treatments.

As prep for the radiation treatments, scans were performed. Scans revealed that in a very short time the leg tumor had aggressively grown. My husband underwent 35 radiation treatments in a row. Not only did the tumor not shrink, but it had grown even more. My husband's leg grew to a giant size to the point where he couldn't even couldn't lift it, and eventually not move it to walk or get out of bed. It got so large that not even the largest size underwear could be pulled over his leg.

On 1/5/17 scans revealed that tumors had also aggressively grown in both lungs. His left lung was so completely filled with tumors that he was getting no airflow. He was then put into hospice care.

The tumor which initially metastasized to his lung made leg amputation questionable. However, even if there had been nothing in the lungs, my husband resisted amputation. I just wanted to make it clear that amputation was not an option overlooked by the Surgeon and Medical Team.

We thank Donna for having the courage to share her story, and the interest to help others fighting sarcoma. Doug's story is a scary one - we have much to learn about these rare cancers that needlessly destroy lives.  With your help, we can invest in research to end sarcoma as we know it.

 

Doug Hoder in Barcolena  Doug Hoder in front of a water fall

 

Heidi Bright

 Heidi Bright

Heidi BrightIt all began for me in the oncologist's office in 2009. I got the paralyzing message ... there was no cure for the highly undifferentiated uterine sarcoma. I sat terrified and in shock. I didn't even know what to ask. She told me I had end-stage cancer with the most aggressive type of cells. What do you do?

 

Sound familiar? Remember thinking if you've been diagnosed with cancer, or any debilitating disease, if that doesn't feel like a death sentence, I don't know what does.

 

First thing that hit me—I'm a mother. What would happen to my kids? With all due respect, the doctors didn't have much to offer.

 

I knew I needed to do everything I could to survive. That meant I needed to use everything the doctors knew about, and much more, just to stay alive.

 

So I began my journey through two years of chemotherapy and three major surgeries. The cancer was relentless; it kept coming back. After my final lung surgery, guess what news I got? Get ready for hospice. Like my life was over.

 

Yet during those two years of treatment, I also went through an enormous personal makeover. I unwittingly did what many stage-4 cancer survivors have done. I went into remission—a process I now call the ABCs of healing. I had changed my attitudes, my behaviors, and made major life choices. This brought healing to my heart and my mind... and my body followed.

 

I've been in radical remission since November 2011, free of evidence of disease and free of cancer treatment.

 

In 2014 I received the Voices of Women award for outstanding achievement in personal growth and transformation from Whole Living Journal magazine. More than 250 practical tips I used during the cancer journey are included in the surgeon-endorsed, traditionally published Thriver Soup: A Feast for Living Consciously During the Cancer Journey, http://thriversoup.com/.

Youtube: https://www.youtube.com/watch?v=0JKKn72A-Po

Tony M.

"... My leiomeyo sarcoma is on the medial side of my left knee. It had been misdiagnosed as a lipoma and disorganized hematoma. It was not until it had become very painful and my wife insisted on a MRI that led to what it really was. The first MRI hinted at possible cancer and suggested a contrasted MRI. Two days later my orthopedic surgeon ordered a contrasted MRI and it cleared me of cancer. Since it was so painful and I had lost some range of motion he decided to perform surgery to take it out. While I was having this initial surgery it was then realized that it was not normal tissue so a biopsy was performed. The lab then said it was a soft tissue sarcoma. I then made it to Seattle Cancer Care Alliance to meet with the doctors mentioned above. It was made clear to us that the SCCA are the best at dealing with sarcomas."

"I have since been through four rounds of chemo therapy at the University of Washington Medical Center. Each round I am inpatient for five days. It is hard on me but it has been very effective. This Thursday I am having surgery performed by Dr. Conrad. I am looking forward to have the rest of the tumor removed! But my life has become much more normal since the chemo. I am back to walking 6 miles at a time several times a week, riding my bike the same, along with various other exercises. We also do a couple of hikes on the weekends. The attached pictured is me with our dog Denali. Also the pain has been long gone!"

"I will still have radiation to go through for five weeks and then possibly two more rounds of chemo but I feel I am on the good side of it. At this point I feel very good and just so thankful for the care and treatment I am receiving. This is a very rare cancer for Alaska, as well as many places, so travel is necessary for this type of care and donations such as yours really helps. Insurance does not cover travel and lodging."

Sophea Uk

sophia 5

In June of 2011, Sopheathought he'd strained his groin after a strenuous workout. But he didn't give it much thought, because he had other things on his mind - like his chemistry final at OSU. By the fall of that year, what he originally assumed to be a strain had grown into a concerning lump in his leg. He made an appointment with the student health center to get it checked out. The nurse thought it might be a blood clot, and sent him to the ER for an ultrasound. After a long day of testing and referrals,Sophea was sent to OHSU for a biopsy. "That was scary, but Dr. Hayden was great," Sophea said. In November of 2011 he learned that he was battling synovial sarcoma. 

Chemotherapy, radiation and surgery followed his diagnosis. "You should see the scar from my first surgery - the cavity left by the tumor was so large they had to take muscle from my abdomen to fill it." The scar Sophea mentions runs from the middle of his abdomen to the middle of his leg. More surgery, chemo and radiation followed, and in June 2012, nearly a year after he first noticed a problem, Sophea was wrapping up his treatment. Unfortunately, in April 2013 a scan showed a growth in his chest; and Sophea has just recently completed his ninth round of in-patient chemo for a tumor the size of a football on the bottom of his right lung. "Today I have stage 4 synovial sarcoma." 

When asked why someone should support Northwest Sarcoma Foundation, Sopheaaptly notes, "Today most research money is put into common cancers, like breast cancer. Someone diagnosed with stage 4 breast cancer has a chance at survival because research has developed effective treatments. The same is not true for synovial sarcoma. What doctors are doing today to treat sarcoma is a crapshoot - they just don't know what will work and what won't. Research is needed to change that." 

 

Peter F.

                                                                                                         Peter- 2011 052

It is now 4 years since we heard the words that Peter had cancer. Peter was diagnosed with ewing's sarcoma, in his pelvis on March 11, 2009.  At the time Peter was 11 years old. Peter had 14 rounds of chemo, 5 weeks of radiation treatments and had 1/4 of his pelvis removed. Peter's pelvis was replaced with cadaver bone and secured with a metal plate and screws. To regain his mobility after surgery, Peter worked really hard. Currently. Peter is in high school and plays both basketball and soccer for his school teams. Peter has the physical scars from his cancer, but our whole family carries the emotional scars. We have learned from this experience to cherish every moment and not to take anything for granted. We are not promised tomorrow, so we must make the most of today.

 

 

Daniel N.

By way of introduction, I am both a physician and a sarcoma survivor. As a physician, I am an internist, pain medicine specialist, naturopathic physician, and Chinese medicine doctor. Needless to say, this background has introduced me to a broad swath of both conventional and alternative treatments.

As a patient, I had a chondrosarcoma resected from my right hip, and a ‘long stem prosthesis' inserted on July 19, 2007. I wish I could offer you an alternative medicine cure for sarcoma, but I have no such miracle up my sleeve. If not for the expert surgical care of Dr. Ernest Conrad and his team at the University of Washington, I would not be healthy and disease free as I am today.

What I can offer you, however, is a protocol I have used not only on myself, but on many of my patients, to accelerate and enhance post-operative recovery. I have seen this protocol (at times modified depending upon the surgery and individual patient) facilitate recovery from a wide variety of surgical procedures.

With respect to my personal anecdotal surgical recovery experience, despite having a large tumor which required the excision of nearly half my femur and quite a bit of the surrounding soft tissue, I was off all pain medication (including aspirin, acetaminophen, or NSAID's) within 48 hours. The bleeding from my drains decreased rapidly and they were pulled after 4 days (considerably shorter than usual).

Most remarkably, though, has been my long term recovery. Due to the extent of the tumor, and the current state of technology, the only muscles that could be reattached to the prosthesis were gluteal muscles secured by two cables, one of which broke shortly after the surgery. Despite this, Dr. Conrad was surprised to see that at my 6 month follow-up, I had function not only of the gluteals, but of other important hip muscles, such as the psoas, iliacus, and adductors. The only plausible explanation he could offer was that these muscles had attached themselves directly to the titanium shaft of the prosthesis. He noted that this had been seen in rabbit models, but not in humans! (I do like carrots, but have only two children, and...well, we'll leave it at that).

I am now fortunate enough to walk without a cane (except for long excursions), I can climb stairs with my effected leg, and can arise from a full Asian-style squat without supportive assist. No, my hip is not 'as good as new:' I will never run again, and when I get tired I have a visible limp. Nevertheless, my functional recovery has been beyond my as well as my surgeon's expectations.

For more information on Dr. Newman's sarcoma surgery recovery protocol or supplements, please identify yourself as a sarcoma patient, and e-mail your request to: This email address is being protected from spambots. You need JavaScript enabled to view it..

Daniel I Newman, M.D., N.D., M.S.O.M.
Diplomate, American Board of Internal Medicine
Diplomate, American Board of Pain Medicine
Diplomate, North American Board of Naturopathic Examiners

Kate V.N.

I remember Kate's first ear infection. She was only 4 months old and I was so anxious and upset that my baby was hurting and sick. Every parent wishes nothing but health and happiness for their children. It is possible to imagine your child being seriously ill and you think that you know just how you'd feel and what you would do. Reality is nothing like you ever imagined. The instant feeling of terror and helplessness is nothing like you have ever experienced before. When your pediatrician says the words "your daughter has cancer" your world as you've known it, is forever changed.

Our journey with this disease began in May of 2003. Kate had come to me in April, just before spring break and showed me a very small lump (about the size of a quarter) on her right leg. It looked like a welt. I figured she had banged it during gymnastics practice and told her we would keep an eye on it. A few weeks later I asked her how the bump on her leg was, fully expecting it to be gone. She said it was much bigger and I asked her to show me. It was at least double the size of just a few short weeks ago. My husband and I were sitting on the couch and we both looked at each other with worry. I had a sick feeling in the pit of my stomach. The next morning I called the pediatrician and they scheduled an appointment right away. Kate's doctor looked at it, and examined it, and said she would be right back. I was still holding out hope that she would just say it was nothing to worry about and send us for an x-ray or something. Instead, she came back to the room with a piece of paper with the address and name of a pediatric oncologist on it. She said they were waiting for us and to drive right over. My husband was with us thank goodness, and we left immediately. Kate thought it was all an adventure, a morning off school! I was scared, but still very optimistic.

By the end of the day after a CT scan of her leg, a meeting with the oncologist and a surgeon, we knew she had a tumor of some sort in her leg and that it would need to be biopsied. The surgeon scheduled it two days later and everyone kept telling us there was a 75% chance it was just a benign tumor. We were worried, but figured with a 75% chance of it being benign; things would turn out just fine. Kate was nervous but thought of it as another adventure, as she had never been in the hospital before. The day of the biopsy the surgeon came out and told us we should prepare that the pathology would not be good news. He was a wonderful person and spent nearly thirty minutes with us answering all of our questions. The wait then began. We knew a week later that it was a primitive high grade sarcoma of some type, but the hospital pathologists had never seen anything like it. They sent it to Emory University to Dr. Sharon Weiss an expert pathologist on Sarcomas. As we waited to hear just what type of sarcoma she had they did a bone scan, a chest CT, a PET scan, and an MRI. The news was worse than anyone thought. She had stage 4 cancer with what looked like mets to her lungs and femur. A Hickman catheter was placed and a bone marrow biopsy was done. Two weeks after we had taken her in we heard the words Mesenchymal Chondrosarcoma. No one knew much about it and there was no treatment protocol. Because she was stage 4, they began chemo using the Ewing's Sarcoma Protocol. After two rounds of chemo she had the tumor removed and we had the first good news in two months. Her tumor was only 3.8cm in size and the surgeon had obtained great margins. No radiation therapy would be needed. We also found out that the bone biopsy of the supposed met in her femur was normal! She then had three weeks to heal and chemo began again. Another month went by and the chest CT was repeated. It had been three months since the original and it showed the exact same tiny spots were unchanged in any way. The radiologist said it was unlikely they were Mesenchymal Chondrosarcoma mets, but a probable post inflammatory process. This was our first moment that we thought wow, maybe this isn't as bad as everyone thought! Kate finished her chemo at the end of September, just 5 months after diagnosis. Her chest CT still showed no change and everyone was cautiously optimistic at this point.

Her continued chest CT's show her lungs to be unchanged and she is thriving as a fourteen year old. We have had moments of worry over the years, most recently a new lump she found that needed to be biopsied. Thankfully the lump was some scar tissue and bone growth over a metal plate in her leg. It did bring back the fear instantly and reminded us of our family's commitment to help raise funds for sarcoma to someday find more effective treatments for this difficult cancer.

The experience we have been through has taught each of us valuable lessons in life. I have learned to "not sweat the small stuff" of which I was very guilty of before. I also enjoy each moment of my children's daily life. It has made dealing with the moody teen age years much easier, as I can quickly bring to mind our terror of losing Kate and it gives me infinite patience with my two kids.

My husband who has always been a wonderful father and husband, has now re focused his priorities and makes sure his life is balanced between work and home. He has a renewed sense of family and is always the life of any activity, always the one who has a car full of kids going up to snowboard for the day or taking the kids out in the boat to wakeboard or go tubing.

My son, Drew who is 17 has a sense of what family really is. He has developed a wonderful sense of compassion for others and I think he really enjoys spending time with us. (Those of you with teens understand the enormity of that statement)! We are very proud of the person he is becoming. Much to Kate's pleasure he has always treated her just like his little sister. When she was going through chemo, he still teased her and gave her a hard time as he had before, I know she loved this, as being treated different always made her mad.

Kate is someone who I am incredibly proud of. She was sunny and positive while going through treatment, fought hard to get all of her strength back after her surgery, and now has embraced the fact that she is a survivor. I t would have been easy to get past all of this, and return to her old life of being a kid; instead, Kate has become passionate about fundraising. She wants to help others who are facing the diagnosis of Sarcoma.

Kate became involved with the NW Sarcoma Foundation almost three years ago at the first Hike, Bike, or Trike. I had stumbled across their web site looking for more information about sarcoma and was thrilled with all of the information the web site had available. We were lucky with Kate's outcome; I now realize how important it is to seek out a Sarcoma center of expertise as so many sarcomas are mistreated initially by general surgeons due to their rarity. I was also happy to learn of this wonderful community so nearby that was offering support and trying to make a difference in the lives of sarcoma patients and their families. Kate sent out an email to all of her friends and family, she formed a team called the Sarcoma Slammers, and had 22 people join her for the walk, all wearing white hats. She raised $5,300 for the Foundation her first year and raised $6,100 last year. Most importantly she came away with a sense of doing something really important to help others still battling this disease.

I know that we will always remain involved; supporting others who are newly diagnosed and "fighting the fight" with the direction and guidance provided by The NW Sarcoma Foundation.

Chloe B.

At close to 4 month's old Chloe started to run a mild fever. We woke up on aThursday to find that she had gotten sick sometime in the night and she was burning up. Thinking that she had the flu and given how high the fever was we made a trip to her pediatrician that day. During the process of determining what may be going on a urine and blood test was run and sent to the lab while we waited. Urine test came back with traces of white blood cells and the blood showing that it looked like an infection of some kind was going on. The immediate thought was a urinary tract infection (UTI), the doctor explained that these were common in little girls and that it could be taken care of with some antibiotics. One of the concerns though was that because of her age if it had or was spreading to her kidneys that could make things substantially worse. The doctor commented that typically for UTI's they would give her a shot of antibiotics here and send us home, however, because she was not quite 4 month's old yet she wanted to send us to the hospital for a broad spectrum antibiotic via an IV to make sure they kill what ever bug may be growing in her and to check and to get an ultrasound of her kidneys to make sure it had not made it that far. So we packed her up and headed right over to the local hospital. We got our room and Chloe was started on her IV. The hospital wanted to keep her over night for monitoring and then they wanted to do the ultrasound the next day. Tina and I both stayed with our little girl over night trying to sleep in a chair only made for one. The next day (Friday) Chloe had her ultrasound and we headed back up to the room. Tina's mom was kind enough to come relieve us for a couple of hours to go home and get some sleep before coming back to pick up Chloe and return home. We had only been home maybe an hour when I received a call from a doctor who we hadn't met or talked to before. I recall a tone in her voice that automatically put me on guard, "We have found a large mass in or near her abdomen. We are going to transport her to Children's Hospital with her grandma by ambulance and we need you and her mom to meet her there. We want to get tests started right away before the doctors and everyone go home for the weekend." If she said much more than that or anything afterwards I don't recall it. I broke the news to Tina and we immediately headed to the hospital. Testing involving imaging, poking and restraining our little baby girl began and would last over the next few day's intertwined with doctors in and out of our room, forms being signed, questions asked and no sleep. Initial diagnosis came back that they believed, but were not positive of, that it was a germ cell tumor. It was explained that while not common they do see this type of thing in little girls. It was explained that they are tumors that grow on the ovary, 99% of the time they are benign and treatment involves taking an ovary, a fallopian tube and the tumor with no Chemo needed. While the news was devastating Tina and I both realized it could have been worse.

Surgery was scheduled. The surgery took several hours with Tina and I waiting for the beeper to sound signaling the surgery was done and we would soon have our baby back. Finally the beeper goes off and we head to the recovery room. I remember Tina asking me while we wait "what if it is cancer?" and all I could think of to say to her was "that if in fact it was, we bear down and beat it with her, there is no other option". The surgeon walks in. I was standing and Tina sitting. He looks at me and tells me that I probably want to have a seat. I remember thinking why do I need to have a seat, you don't need to sit down to hear good news. I sit next to Tina and the surgeon proceeds to explain that the surgery went well and Chloe did not bleed hardly at all and did not need any blood. This was one of the main concerns when the surgery was being discussed. Then the "but" was mentioned,,,,,,,,but the tumor was not coming from her ovary like we thought it was,,,,,,,,,,,it was actually stemming from her bladder and about the size of a grapefruit. The doctor pauses and has a look on his face so I ask if this the same thing just from a different area, still benign, etc. He tells us no, and explains his initial assessment is that it appears to be a tumor known as Rhabdomyosarcoma (Rab-do-my-o-sar-coma), and that it was definitely malignant. Pathology would have to confirm. Chloe was being taken back up to her room, Tina and I now had to go tell our friends and family waiting for us back at the room that Chloe had cancer. We were now in the hospital until whenever while Chloe continued to be poked and diagnosed.

A few day's later it was confirmed that Chloe's cancer was Rhabdomyosarcoma sub category Embryonal. It was also determined that they did not feel they had gotten it all as they saw "positive margins". Another surgery was scheduled for later down the road, her Hickman or central line as its called for the chemotherapy was implanted and we began our new life as parents with a "Rhabdo Baby".

A year and a half or so later, a second surgery, cat scans, chemo treatments, learning what it means to have a child with cancer and all the things that go along with that emotionally and physically, a scare that there was a reoccurrence, and our first cat scan since she has been taken of treatment coming back clear and here we are with just an amazing little girl who has shown a strength that I am so envious of and who has never missed a beat.

Through it all no matter how it appeared she was feeling she never stopped smiling as if to say Mommy and Daddy, we're going to be ok.

David, Tina, and Chloe

Warren B.

You would think that "Staying in the Game" meant the ability for me to be able to win the 2008 Alaska State Racquetball Championship in all ages, at age 62 years old while drawing a social security check!

But actually "Staying in the Game" for me is the transition my life slowly took in a positive way 7 years ago when I was told by my primary doctor, that I had an incurable and very rare cancer called Leiomyosarcoma or LMS. Soon afterwards, I would find out , that it also was Stage 4, and had already metastasized from my right thigh to my lungs! Immediately, my business, family and of course my competitive Racquetball, everything came to a stand still! My life that was in the process of lasting forever, with very little to worry about, suddenly changed right then and there!

My new life was about to begin! Which at first was completely void of goals and direction and most importantly fear!

Because LMS is so rare, Alaska Hospitals were not qualified to give me the proper care and treatment. So even though my family and business was here, my wife and I have spent a good part of the first 5 years in Seattle at there famous Seattle Cancer Care Center and the University of Washington Hospital. The first 5 years were spent trying to catch up with my cancer.

While recuperating from my first surgeries in Seattle I read a book written by Lance Armstrong, that my Uncle had bought me. It was just a book, but it had a tremendous impact on me! I decided then and there that I was going to survive, and that I needed to face this "beast " head on! I also wrote down a quote (offered by Dr. D. Kossove who also has Leiomyosarcoma), that I keep to this day from Dr. Seuss. He said "you have brains in your head, you have feet in your shoes, you can steer yourself in any direction you choose. You're on your own. And you know what you know. You are the guy who'll decide where to go!

Now it has been 7 ½ years since I made up my mind to "stay in the game", and not to let this disease change my life, except in the direction I want! Being a survivor has changed my life in a positive way. No matter what course this cancer goes, I'll meet it head on as I've done so many times before with the wisdom and knowledge that Lance Armstrong , Dr. Seuss, and others have taught me!

I now travel the country playing in National and International Racquetball Tournaments, and am currently ranked 5th in the world in my age category. While traveling I meet, talk and sometimes help survivors and caregivers with Sarcomas and other Cancers. Through my Racquetball, I've been able to get my word out to help in the fight for cancer through speeches, newspapers, magazines, television and my annual "slaying the beast" Racquetball fundraisers in Anchorage. It has become Alaska's largest racquetball tournament with many of the participants playing only because its a way for them to help with cancer! Also, in May 2009, we will have a very large tournament in Washington State, to raise money for Sarcomas, and slowly I hope, through Racquetball to have more tournaments, around the country.

With my new life that God has extended to me, I am a board of trustee for LMS direct research foundation trying to find a cure for cancer.

Before cancer, I played Racquetball for me, but now I play it as my way of helping fight cancer. Like so many other people, my only hope is to find a cure. Otherwise. I will always be fighting Sarcomas for as long as I live! Helping people with cancer is, and will be my main purpose no matter which direction my cancer goes, good or bad, for as long as I live!

Last but not least I want to include my family. They've been with me for every challenge and they've made me so proud with their love and devotion. I've come to realize that my Grandkids look to me with respec, and handling this disease correctly will in some way be another lesson I can teach them in life.

Thank-you very much for allowing me to tell my story.

Warren

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If you would like to share your story or make a tribute, please send us your personal sarcoma experience (max. ~500 words), 2 photos (high quality) or link to a YouTube video. Please submit materials to This email address is being protected from spambots. You need JavaScript enabled to view it.

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