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2016 Annual Newsletter

Dear Valued Supporter,

What an incredible year for the Northwest Sarcoma Foundation! We are helping more people with sarcoma than ever before, expanding our reach from financial assistance, and working to grow outreach programs. We believe that NO ONE should face sarcoma alone, and with record attendance at our two key Dragonslayer Walks for Sarcoma in Portland and Seattle it’s clear that we have a strong and supportive community.

We assembled a new team this year, starting with the foundation’s first full time Executive Director, Jason Sears, who started in January. Katie Horner joined in July as our Washington State Director, and Megan Gundle started in September as our Oregon State Director. Katie and Megan are half-time staff focused on events and relationships within their states. Jason splits his time between administrative tasks and foundation growth and leadership throughout the Pacific Northwest.

This team is just getting started! We’re guided by a deep passion for our cause: we’re building a Northwest sarcoma community! Join us in 2017 for some exciting new events, including our first ever Sarcoma Patient Education Conferences and an expanded Dragonslayer Walk for Sarcoma.

All of this great work is possible because of the generosity of great folks like you. Thank you for your trust, your support, and your commitment to ending sarcoma as we know it.

All the best,

Staff & Board Members, Northwest Sarcoma Foundation

 

Picture of the board of directors

Meet the team!

We've got a whole new team this year.  Meet our Executive Director, Jason Sears... our Washington State Director, Katie Horner... our Oregon State Director, Megan Gundle, and our 2016 Board Of Directors, including brand new board member, Bob Ortblad.

Jenna Helps Logo

Help$ Financial Assistance Program Update

 In 2016 the Northwest Sarcoma Foundation assisted over 120 families with over $60,000 in financial assistance grants. [Read More]

Dragons Last Ride Logo

"Why We Help" By Chris & Michele Westerholm

After Jenna’s death, we wanted to honor her memory and express our appreciation for the support that we’d been given, and in turn pass that along to other families. [Read More]

2016 Events

In 2016 the Northwest Sarcoma Foundation raised $275,000 through three foundation events and several third-party fundraisers, rallying more than 2,000 members of the sarcoma community.

 

Sig Kohl's Legacy

In honor of Sig Kohl, we created the Sig Kohl Legacy Award.  The award will be given annually to individuals who made a lasting, enduring difference in our fight against sarcoma.

Ways To Help

here are multiple ways to get involved and help continue our mission in 2017! Please consider  donating, attending our events, volunteering, or becoming a sponsor.

Thank Yous Director's Circle Uncover Sarcoma

Privacy Policy

Your use of this Website is subject to the terms of this Privacy Policy. IF YOU DO NOT AGREE TO THE TERMS OF THIS POLICY, PLEASE DO NOT USE THE WEBSITE.

Your privacy is important to Northwest Sarcoma Foundation (“NWSF”, “we”, “us”). We want you to understand the types of information we may receive directly from you or automatically through your computers when you access www.nwsarcoma.org (“Website”), and how we treat your information.

IMPORTANT INFORMATION REGARDING USE OF THE WEBSITE BY CHILDREN:

Children Under Age 13: NWSF does not knowingly collect or solicit personal information from anyone under the age of 13. If you are under 13, please do not attempt to send any information about yourself to us through the Website, including your name, address, telephone number, or email address. No one under age 13 may provide any personal information to NWSF through the Website. If we discover that personal information was collected through the Website from a child under age 13 without verification of parental consent, we will delete that information as quickly as possible.

Children Between the Ages of 13 and 18: We recommend that minors 13 years of age or older ask their parents for permission before sending any information about themselves to anyone over the Internet.

TYPES OF INFORMATION COLLECTED THROUGH THE WEBSITE

NWSF collects two types of information through this Website:

  • Personal and payment information you knowingly disclose, such as your name, e-mail address, mailing address, phone number, and credit card information; and
  • Website use information collected by us as you interact with our Website.

USE OF INFORMATION COLLECTED THROUGH THE WEBSITE

NWSF will not sell, share, or otherwise disclose your personal information to any third party without your consent except when we reasonably determine it necessary to do so in order to comply with law or protect the safety, property or legal rights of NWSF or others. NWSF may use your personal information to provide you with updates or other information about NWSF and its programs.

CHANGES TO THIS PRIVACY POLICY

We may change this Privacy Policy without prior notice. If we make changes to the Privacy Policy, we will indicate at the top of this page the effective date of the change. Changes to the Privacy Policy are effective as soon as they are posted to the Website. You accept any revisions if you use the Website after changes are made to the Privacy Policy.

JURISDICTIONAL ISSUES

NWSF operates and controls the Website from the United States, and does not intend to subject itself to the laws or jurisdiction of any state, country, or territory other than that of the United States.

CONTACTING US

You may contact us:

  • via e-mail at: This email address is being protected from spambots. You need JavaScript enabled to view it. (Please note that e-mail communications will not necessarily be secure; accordingly you should not include credit card information or other sensitive information in your e-mail correspondence with us.)
  • via telephone at: 503-887-7117
  • via mail at: Northwest Sarcoma Foundation, PO Box 91460, Portland, OR 97291

Photo Galleries

Click on any thumbnail below to open a Flickr window showing a set of photos!

 

2016 Stories from The Vineyard
2016 Dragonslayer Portland
2015 Stories from the Vineyard Seattle
2015 Dragonslayer PDX
2015 Dragonslayer Seattle
2014 Stories from the Vineyard Seattle
2014 Dragonslayer PDX
2014 Dragonslayer Seattle
2013 Stories from the Vineyard PDX
2013 Dragonslayer PDX
2013 Dragonslayer Seattle
2012 Stories from the Vineyard Seattle
2012 Dragonslayer PDX
2012 DragonSlayer Seattle
2011 Stories from the Vineyard Seattle
2011 Stories from the Vineyard Portland

View ALL Northwest Sarcoma Foundation photo albums.

Pediatric Autopsy

Overcoming autopsy barriers in pediatric cancer research.

Alabran, J. L., Hooper, J. E., Hill, M., Smith, S. E., Spady, K. K., Davis, L. E., Peterson, L. S., Malempati, S., Ryan, C. W., Acosta, R., Spunt, S. L. and Keller, C. (2013)

Pediatr. Blood Cancer, 60: 204–209. doi: 10.1002/pbc.24320

http://onlinelibrary.wiley.com/doi/10.1002/pbc.24320/full

 

Pediatric autopsy consent: Helping families create hope out of despair.

Jarzembowski, J. A. and Hicks, M. J. (2013)

Pediatr. Blood Cancer, 60: 173–174. doi: 10.1002/pbc.24378

http://onlinelibrary.wiley.com/doi/10.1002/pbc.24378/full

ALittleRedWagonFullOfHope FRONTCover SM

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Upcoming Events

Dragonslayer - Seattle

Green Lake
Saturday, April 22, 2017
LEARN MORE | REGISTRATION (opens 1/9/2017) 

Portland Gala

SFTV SmallPortland, Oregon
Spring, 2017
MORE SOON!

Dragon's Last Ride - Alaska

Anchorage, Alaska
August, 2017
LEARN MORE | REGISTER

Dragon's Last Ride - Washington

Bellevue Harley Davidson
August, 2017
LEARN MORE | REGISTER

Dragonslayer - Portland

Cook Park
September, 2017
LEARN MORE | REGISTER 

Stories From the Vineyard

SFTV SmallSeattle, Washington
October, 2017
MORE SOON!

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