• 1
  • 2
  • 3

Patient Education Series: Sarcoma Clinical Trials

Katie and Jennifer

Watch the video here!
You can still submit your questions to Jennifer by email: This email address is being protected from spambots. You need JavaScript enabled to view it.


Join the conversation on our Smart Patients forum [Sarcoma trials search | Online tirals discussion]

Are you interested in learning more about the clinical trials offered for the treatment of sarcoma? Join us November 29th as we discuss the “CLINICAL TRIAL BASICS” with current Leiomyosarcoma warrior Jennifer Ensey.

Jennifer has participated in two clinical trials in additional to multiple other treatment options. Her aggressive and proactive approach to her treatment process has kept her sarcoma at bay for over 7 years. LIVE on Facebook Thursday November 29th Jennifer will explain what a trial is, how to choose a trial, and her experience as a patient in sarcoma clinical trials.

This series will also include a question & answer segment. Questions for Jennifer pertaining to clinical trials or her story can be submitted by email to This email address is being protected from spambots. You need JavaScript enabled to view it.. We will answer as many questions as possible during the video presentation. Some questions may be answered in follow-up sessions or directly via email.

Jennifer received the following treatments/medication during clinical trials:

  • Tribectedin - Now FDA Approved for Sarcoma Treatment -On October 23, the Food and Drug Administration (FDA) approved trabectedin(Yondelis®) for the treatment of two subtypes of soft tissue sarcomas: liposarcoma and leiomyosarcoma. The approval is for patients whose cancers are advanced or cannot be removed by surgery and who have already been treated with anthracycline-based chemotherapy.
    Source: https://www.cancer.gov/news-events/cancer-currents-blog/2015/fda-trabectedin-sarcoma
  • Dacarbazine: Dacarbazine is used for metastatic malignant melanoma, Hodgkin's disease, soft tissue sarcomas, neuroblastoma, fibrosarcomas, rhabdomyosarcoma, islet cell carcinoma, and medullary carcinoma of the thyroid.
    Source: http://chemocare.com/chemotherapy/drug-info/dacarbazine.aspx

After the video airs on November 29th the Northwest Sarcoma Foundation invites you to continue the conversation on our online forum via SmartPatients.com. This online community provides a place for patients, and caretakers to connect with other people affected by sarcoma. Have a question, or just need someone who can relate? Connect on SmartPatients! 

Not able to tune in on November 29th? No problem! The link to this and future Educational series videos can be found here!

Latest Stories & News

  • Turning Point 12-12-17

    Forward This is a poem from my father’s third book of poems — all written after his initial Leiomyosarcoma diagnosis in the...

  • 2017 Events 12-07-17

    We saw huge growth in our events this year with exceeding our fundraising goals! Check out some of the highlights below, and...

  • 2017 Help$ Financial Assistance Update 12-07-17

    In 2017 the Northwest Sarcoma Foundation assisted over 185 families with over $110,000 in financial assistance grants! Through the...

  • 2017 Washington Update 12-07-17

    In April of 2017 we kicked off the year with our 13th Annual Dragonslayer Walk to end sarcoma held at Green Lake Park in...

  • 2017 Oregon Update 12-07-17

    In 2017, the Oregon community proved that together, we are stronger than sarcoma! The year started on a high note, receiving a...

Sarcoma Stories

  • Students honor beloved school secretary Sheryl Rice 11-01-17

    We are honored to announce the donation of $500 raised by students at Cascade Middle School in Seattle in memory of Sheryl...

  • In Memory of Jiah Quayle 05-24-17

      It is with heavy hearts and sadness we announce the passing of sarcoma warrior Jiah Quayle.  Jiah’s mindset throughout his...

  • James Fuller 03-24-17

            James Fuller was young and vibrant when diagnosed with Synovial Sarcoma.  He is a devoted father, music lover and sarcoma...

  • In Memory of Doug Hoder 03-24-17

    Doug Hoder passed away on February 3rd, 2017 after a 10 month battle with the osteosarcoma.  Prior to that, he had been a...

  • Heidi Bright 03-24-17

      It all began for me in the oncologist's office in 2009. I got the paralyzing message... there was no cure for the highly...

  • In Memory: Angela Mora 05-22-17

    It is with great sadness that we announce the passing of sarcoma warrior, Angela Mora.   Angela was an outspoken advocate for...

Upcoming Events

Sarcoma Meetups

sarcoma meetup logoNo one should face sarcoma alone!
Portland & Seattle
Meetings monthly!

Dragonslayer - Seattle

Green Lake
April 28, 2018
Registration opens January 2018!

Dragonslayer - Portland

Cook Park
September, 2018
Registration opens May 2018!

Stories From the Vineyard

SFTV SmallSeattle, Washington
October, 2018
Tickets available April, 2018!

Guidestar Gold Logo


 Cancel Cancer Team Jumping for joy

Help us END SARCOMA and ensure 

Save the fees!  Donate via Paypal and they
will give 101% of your donation to us,
no fees! (Details)

Giving From a Donor Advised Fund (DAF)? 

Our Tax ID: 91-1717600